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Module 1: Importance of Treatment Outcomes
Module 2: Importance of process quality
Module 3: Relative treatment preferences
Module 1: Achievement of therapy outcomes
Module 2: Achievement of process quality
Module 1: Importance of Treatment Outcomes
The following questions will help us find out how important the following goals are to you personally in the
current treatment
of your CLL. By "treatment", we mean both the
care
provided by your doctors as well as any treatment with
medication
.
How important is it to you ...
not at all
somewhat
moderately
quite
very
does not apply to me
... that the therapy reduces or prevents fatigue (exhaustion and chronic tiredness)?
not at all
not at all
somewhat
somewhat
moderately
moderately
quite
quite
very
very
does not apply to me
does not apply to me
... that the therapy reduces or prevents the physical effects of CLL?
not at all
not at all
somewhat
somewhat
moderately
moderately
quite
quite
very
very
does not apply to me
does not apply to me
... that the therapy helps make your CLL less visible?
not at all
not at all
somewhat
somewhat
moderately
moderately
quite
quite
very
very
does not apply to me
does not apply to me
... that the treatment is not time-consuming?
not at all
not at all
somewhat
somewhat
moderately
moderately
quite
quite
very
very
does not apply to me
does not apply to me
... that the therapy disrupts your daily routine as little as possible?
not at all
not at all
somewhat
somewhat
moderately
moderately
quite
quite
very
very
does not apply to me
does not apply to me
… that the therapy you receive impairs your immune system as little as possible?
not at all
not at all
somewhat
somewhat
moderately
moderately
quite
quite
very
very
does not apply to me
does not apply to me
… that the therapy is individually tailored to your comorbidities?
not at all
not at all
somewhat
somewhat
moderately
moderately
quite
quite
very
very
does not apply to me
does not apply to me
… that the treatment helps you continue leading your life as before the diagnosis?
not at all
not at all
somewhat
somewhat
moderately
moderately
quite
quite
very
very
does not apply to me
does not apply to me
… that the treatment enables you to continue your working life with fewer limitations?
not at all
not at all
somewhat
somewhat
moderately
moderately
quite
quite
very
very
does not apply to me
does not apply to me
… that the treatment enables you to enjoy a normal everyday life and leisure activities?
not at all
not at all
somewhat
somewhat
moderately
moderately
quite
quite
very
very
does not apply to me
does not apply to me
… that the treatment enables you to enjoy a normal social life?
not at all
not at all
somewhat
somewhat
moderately
moderately
quite
quite
very
very
does not apply to me
does not apply to me
… that the treatment enables you to have a normal family life?
not at all
not at all
somewhat
somewhat
moderately
moderately
quite
quite
very
very
does not apply to me
does not apply to me
… that the treatment makes you less anxious about a relapse?
not at all
not at all
somewhat
somewhat
moderately
moderately
quite
quite
very
very
does not apply to me
does not apply to me
… that the treatment makes you less anxious about the future?
not at all
not at all
somewhat
somewhat
moderately
moderately
quite
quite
very
very
does not apply to me
does not apply to me
… that the treatment means you think less about your CLL?
not at all
not at all
somewhat
somewhat
moderately
moderately
quite
quite
very
very
does not apply to me
does not apply to me
… that the treatment helps you feel less depressed?
not at all
not at all
somewhat
somewhat
moderately
moderately
quite
quite
very
very
does not apply to me
does not apply to me
… that the treatment makes you less anxious about side effects?
not at all
not at all
somewhat
somewhat
moderately
moderately
quite
quite
very
very
does not apply to me
does not apply to me
… that there is a minimal financial burden associated with CLL and the treatment?
not at all
not at all
somewhat
somewhat
moderately
moderately
quite
quite
very
very
does not apply to me
does not apply to me
PBI – Patient Benefit Index (Index zu Nutzen und Bedürfnissen in der Therapie), Augustin 2006 | version: PBI-CLL, English for UK
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